Remote, with Foundation office in Washington, DC

Executive Director, Mesothelioma Applied Research Foundation

The Organization – Mesothelioma Applied Research Foundation

The Mesothelioma Applied Research Foundation (Meso Foundation) is the nonprofit collaboration of patients and families, physicians, advocates, and researchers dedicated to eradicating the life-ending and vicious effects of mesothelioma.  We offer medical information, hope and support to mesothelioma patients and families, fund the highest quality and most promising research projects from around the world, raise awareness of the disease, and advocate that the public and private sectors partner in the effort to cure it.

The ideal candidate will have the capacity to cast a bold vision for what’s possible in the Meso Foundation’s next phase. They will have a passion for sharing the Meso Foundation’s mission and vision, using data and evidence-based campaigns to support the growth and success of the organization.


Strategic Leadership and Organizational Management

  • Ensure that the activities of the Meso Foundation are in support of its mission, in alignment with its policies and make progress towards its long-range strategies.
  • Along with the Board of Directors, create and execute a mission-centric organizational strategic plan to direct the activities of the foundation.
  • Facilitate the development and approval of an annual budget to meet the needs of the organization.
  • Provide leadership on all human resource matters for Foundation staff, including the availability of professional development, establishment of organizational culture and teambuilding, and oversight of all available benefits, policies, and evaluation systems.

Board Governance

  • Develop and sustain strong working relationships with each member of the Foundation’s Board of Directors.
  • Work with the designated officer(s) on the Board of Directors to maintain a pipeline of prospective new board candidates.
  • Provide timely reports to the Foundation’s Board of Directors about the organization’s activities.
  • Ensure the Board of Directors is in compliance with organizational by-laws.

Fundraising and Network-Building

  • Ensure the Foundation’s annual revenue goals are achieved through sustainable income sources.
  • Identify potential donors and prepare them for contact with the fundraising/development team.
  • Cultivate personal relationships with patients and families in order to build the meso community and cultivate individuals with personal connections to the mission to become major gift donors and volunteers.
  • Serve as the external face and most public champion of the Meso Foundation for a wide range of stakeholders, paying special attention to the reputation and integrity of the organization and its work.
  • Facilitate the process for patients and caregivers to transition to volunteers and advocates.
  • Cultivate relationships with doctors, nurses and social workers, making sure that all people engaging with and treating mesothelioma patients are aware of the Meso Foundation and utilizing its programs and services.


  • Maintain understanding of the Meso community, its constituents and their needs;  Spearhead the evaluation of current offerings and enlist new aspects and/or innovative program updates to best serve our medical and patient support efforts.
  • Develop vision for organization’s communication strategy; In partnership with staff, ensure development of content of newsletter, website, symposium, solicitations, etc. supports that vision.

Leadership for Advocacy, Grants, and the Science Community

  • Communicate regularly, one-on-one and collectively, with doctors and researchers, especially those on the Foundation’s Board of Directors, Science Advisory Board, and/or and those who have received grant funding from the Foundation.
  • Ensure the Foundation maintains a reputation of being the go-to source for resources and provides access to the most current events and news in meso science and treatment through its digital media platforms.
  • Provide executive leadership for the Grants Support Director and the Foundation’s research grant program and provide appropriate oversight to ensure that it remains a peer-reviewed program.
  • Lead advocacy efforts on state and federal levels by leading efforts to cultivate relationships with lawmakers and other governmental representatives and maintaining knowledge about bills that are relevant to the meso community.


  • 3-5 years of experience in an executive leadership role, preferably in a health-related organization.
  • A leadership style that is collaborative, inclusive, transparent, and decisive.
  • Understanding of research grantmaking procedures to ensure integrity of process and stewardship.
  • Demonstrated success working and managing a staff team in a work-from-home, remote environment.
  • Excellent interpersonal skills; strong oral and written communications and the ability to move comfortably in public forums and present Foundation’s vision and mission to diverse audiences.
  • Successful fundraising experience with financial management,  budget development and nonprofit fundraising.
  • Strong understanding of nonprofit administration including board development and management.
  • Passion for mission of organization and the medical community serving patients and families affected by Mesothelioma.


Remote, work-from-home environment. Candidate should be located east of the Mississippi River or comfortable operating business hours within the Central and Eastern time zones. Annual travel is required to 2 to 4 national and international conferences as well as visits to key sponsors and donors as needed. This position is full-time, exempt with a typical 40-hour work week. Flex time is available to meet the specific needs of the position.


Annual salary is $145,000, commensurate with experience, with the possibility for an annual bonus. Full-time employees are eligible for a benefits package that includes insurance, the opportunity to participate in the Foundation’s 403(b) retirement plan which includes a contribution match, 12 paid holidays, and 12 days of PTO.

How to Apply

If this opportunity excites you, email a resumé and cover letter expanding on your interest and qualifications to Applications received by Friday, April 19 will be considered. No calls or in-person application submissions.

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